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Total Pain: Whose experience is it anyway?

Published on: Author: clairemorris1 Leave a comment

The authors of this blog have both been involved in palliative care for over a decade, albeit for different reasons.  Claire Morris is a global palliative care advocate within a palliative care international non-governmental organisation and Lucy Watts has been accessing palliative care services since she was 17 years old as a result of a rare,… Continue reading

‘Total Pain’, Extinction, and the End of the World

Published on: Author: josephwood2 Leave a comment

‘Total Pain’ as the Pain of a Lifetime This post looks at Cicely Saunders’ influential term ‘total pain’ in terms of endings and limits. ‘Total pain’ articulates how pain for someone whose life is ending is a whole overwhelming experience which combines physical, psychological, social and spiritual elements. My own PhD project looks at how… Continue reading

Global development of children’s palliative care: the picture in 2017

Published on: Author: davidclelland Leave a comment

In December we published the overall results from the third ‘world map’ of palliative care development, showing that only a small proportion of the global population, mostly in the global North, live in countries with the most advanced provision of palliative care. We can now present our assessment of global levels of children’s palliative care… Continue reading

Dying and death in “unprecedented” times: The role of learning

Published on: Author: Marian Krawczyk Leave a comment

The world stopped making sense when my sister died. She wasn’t supposed to die young, with a small child, most of her life still to be lived – it was an unprecedented event.  In order to try and find meaning to my inchoate grief, I began to explore others’ stories and experiences with dying and… Continue reading

In the time of COVID – ‘April is the cruellest month’

Published on: Author: David Clark Leave a comment

TS Eliot’s chilling start to The Waste Land has deep resonance in the time of COVID-19. We seem to be exactly in that instant when ‘the dead tree gives no shelter’, when ‘I was neither living nor dead’, and when ‘He who was living is now dead’[i]. The mere 30 days of April have felt… Continue reading

Don’t watch with me

Published on: Author: sgreenhalgh Leave a comment

Reflections of a Hospice CEO on the emerging COVID-19 crisis Toiling up the knoll on brittle ground frost we clambered over a creaking stile to be rewarded by the sun glistening on Windermere set against a backdrop of distant snowclad fells.  Our short walk had brought a welcome opportunity to reflect during our annual board… Continue reading

In these strange times…

Published on: Author: josephwood2 2 Comments

Coronavirus is changing the way we live in a way that is repeatedly said to be unprecedented. We say we are living through strange times, extraordinary times, difficult times. For some of us lucky enough to be able to work from home time might be stretching out in lockdown into an endless series of Thursday… Continue reading

Endings and beginnings

Published on: Author: David Clark Leave a comment

When in February 2014, I heard the news that my application for a Wellcome Trust Investigator Award had been successful, I could scarcely have imagined what would follow over the next six years. The Trust is perhaps unique among funders in the incredible extent to which it gives grantees the scope and encouragement to think… Continue reading