The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be held at the Advanced Research Centre (ARC) at The University of Glasgow and will run from 25th April to 5th May 2023.
Over the past four years, we have worked with people experiencing financial hardship at the end of life, their carers, health and social care professionals, and commissioned award-winning documentary photographer Margaret Mitchell and filmmaker Lucas Chih-Peng Kao to understand the profound effect that people’s socio-economic circumstances can have on their end of life experiences.
We have used a combination of visual methods within the study, aiming to give participants the power to tell their own stories and highlight what matters to them at the end of life. Our methods have included:
Photovoice: Participants were given a camera to take photos of things that matter to them and discuss them with the researcher.
Photographic artist: We commissioned documentary photographer Margaret Mitchell to create images conveying aspects of their end of life experience.
Digital Storytelling: Bereaved carers were supported to create and record a short video and voiceover about their loved ones’ experience of financial hardship at the end of life.
Through the exhibition we hope to share a visual representation of end of life experiences seldom seen or considered by society at large. The exhibition is designed to inform the public conversation around improving the end of life care for those living with poverty and structural disadvantage. It highlights the need for greater awareness and action to address the issues faced by those on low incomes, including inadequate housing, lack of transport, and limited access to social support networks.
The public exhibition will be held at the Advanced Research Centre (ARC) located at The University of Glasgow, 11 Chapel Lane, Glasgow, G11 6EW. The exhibition will run from 25th April to 5th May 2023, and it will be open to visitors from Monday to Friday, 9.00 am to 5.00 pm (excluding 1st May bank holiday), and on Saturdays, 10.00 am to 4.00 pm.
In addition, we will be hosting a professional panel discussion on Wednesday 26th April, 1:00pm – 3:00pm, also in the ARC, to explore the impact of the images and discuss ways to improve end-of-life care for people experiencing financial hardship and deprivation. This is a public event and we welcome anybody who would like to attend. Please see the Eventbrite page for more details and to register.