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New Digital Story for Dying in the Margins: Frank’s Story

Published on: Author: samquinn 2 Comments

To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading

Dying in the Margins: Joost ten Wolde on his wife Stacey O’Brien’s end of life experiences

Published on: Author: samquinn 1 Comment
Stacey sits on her bed looking towards the camera.

This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading

Dying in the Margins – Reflections

Published on: Author: Naomi Richards 1 Comment

The ESRC-funded Dying in the Margins study officially ended this week after 4 years (31st August 2023). Below are some of our reflections on this complex study. The various impacts of the work are still unfolding as Marie Curie continue to press for legislative changes at Holyrood and Westminster, and as we begin to take the… Continue reading

The ‘P’ Word. Difficulties Talking about Poverty at the End of Life

Published on: Author: samquinn Leave a comment
Front cover of the Money Matters at the end of life resource.

The aim of the Dying in the Margins research project has been to explore how socio-economic circumstances shape end-of-life experiences. Open conversations about financial hardship are important, and increasingly so in the context of rising poverty rates due to inflation and the cost of living crisis. Yet, throughout our study, we observed that there can… Continue reading

The Cost of Dying: Photography Exhibition

Published on: Author: samquinn 1 Comment

The Dying in the Margins study, a project exploring the way socio-economic circumstances intersect with end-of-life experiences, culminated in a large public exhibition, The Cost of Dying, held at the Advanced Research Centre at The University of Glasgow (25 April – 5 May 2023). Over the ten days the exhibition ran, we received an overwhelming… Continue reading

DeathWrites: Writing Truth Through Fiction

Published on: Author: Naomi Richards Leave a comment

This blog piece was written by Charlotte Luke, a writer from Inverness, who is also part of the RSE-funded DeathWrites network of 30 Scotland-based writers. Last year, around 8 months after my dad died in a hillwalking accident, I heard about the DeathWrites Network, a group of writers tackling the subjects of death, dying and… Continue reading

The Cost of Dying Photography Exhibition

Published on: Author: samquinn 5 Comments

The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading

Creating Representations of Dying, Death, and Grief: An Innovative Student Assignment

Published on: Author: Naomi Richards Leave a comment

On the End of Life Studies MSc Programme, there is a course entitled Cultural Representations of Death and Dying which examines how dying, death and grief have been represented in popular culture (film, TV, mainstream fiction), visual arts (fine art, photography) and literary genres (creative non- fiction) over the last half century. Students are introduced to… Continue reading