Posts by samquinn

How rurality and financial hardship intersect at the end of life: UofG End of Life Studies Group now recruiting for new ‘Unreached’ study.

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LeftPhoto by Juli Vo on Unsplash. Right Photo by Gary Ellis on Unsplash. Over the last three years, through my work as a Research Associate on the Dying in the Margins study, I have come to understand the ways in which financial hardship can shape end of life experiences. For the Dying in the Margins… Continue reading

‘Dying in the Margins’: From Study Findings to Policy Changes

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In March 2024, the summative findings paper for the ESRC-funded ‘Dying in the Margins’ study was published in Social Science & Medicine – Qualitative Research in Health. Our visual methods study shed light on the challenges of home dying in the context of financial hardship and deprivation in the UK. Utilising photovoice, professional documentary photography… Continue reading

New Digital Story for Dying in the Margins: Frank’s Story

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To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading

Dying in the Margins: Joost ten Wolde on his wife Stacey O’Brien’s end of life experiences

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Stacey sits on her bed looking towards the camera.

This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading

The ‘P’ Word. Difficulties Talking about Poverty at the End of Life

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Front cover of the Money Matters at the end of life resource.

The aim of the Dying in the Margins research project has been to explore how socio-economic circumstances shape end-of-life experiences. Open conversations about financial hardship are important, and increasingly so in the context of rising poverty rates due to inflation and the cost of living crisis. Yet, throughout our study, we observed that there can… Continue reading

The Cost of Dying: Photography Exhibition

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The Dying in the Margins study, a project exploring the way socio-economic circumstances intersect with end-of-life experiences, culminated in a large public exhibition, The Cost of Dying, held at the Advanced Research Centre at The University of Glasgow (25 April – 5 May 2023). Over the ten days the exhibition ran, we received an overwhelming… Continue reading

The Cost of Dying Photography Exhibition

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The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading

Contextualizing the death of Queen Elizabeth II

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On 8th September 2022, Queen Elizabeth II died at Balmoral Castle in Aberdeenshire, Scotland. In the weeks that have followed, there has been debate on what can be learnt from the Queen’s death, her funeral, and the famous queue. In a Twitter thread with over 2 million engagements, Dr Kathryn Mannix (@drkathrynmannix), a palliative care… Continue reading