The first half of this blog was written by Simon Dewhurst, who works in the facilities team at the School of Social and Environmental Sustainability. The second half is written by Dr Marian Krawczyk, Lecturer and programme lead for the End of Life Studies PGCert/PGDip/MSc. The genesis of the blog was a serendipitous conversation between… Continue reading
To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading
This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading
The ESRC-funded Dying in the Margins study officially ended this week after 4 years (31st August 2023). Below are some of our reflections on this complex study. The various impacts of the work are still unfolding as Marie Curie continue to press for legislative changes at Holyrood and Westminster, and as we begin to take the… Continue reading
Blog by Ruth Bickerton, PhD Candidate in Human Geography at the University of Dundee Almost one in five people organising a funeral in the UK have notable financial concerns about paying for it[1]. This means that over 126,000 funerals each year cause real financial problems[2]. Funerals can cost on average in the region of £4,000 for… Continue reading
The aim of the Dying in the Margins research project has been to explore how socio-economic circumstances shape end-of-life experiences. Open conversations about financial hardship are important, and increasingly so in the context of rising poverty rates due to inflation and the cost of living crisis. Yet, throughout our study, we observed that there can… Continue reading
The following is an edited transcript of a conversation between Dr Marian Krawczyk and Carla Booke, CNS who is an MSc student in the End of the Life Studies Programme at the University of Glasgow and is currently conducting research for her final dissertation project. You can find out more about her experiences in the… Continue reading
“Total pain” is the term used within hospice, palliative, and end-of-life care to describe pain which is complex and overwhelming, and which encompasses physical, psychological, social, and spiritual dimensions. It is an attempt to encapsulate experiences of suffering that are unique to advancing life-limiting illness, the end of life, and dying. The term was first… Continue reading
