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‘Total Pain’, Extinction, and the End of the World

Published on: Author: josephwood2 Leave a comment

‘Total Pain’ as the Pain of a Lifetime This post looks at Cicely Saunders’ influential term ‘total pain’ in terms of endings and limits. ‘Total pain’ articulates how pain for someone whose life is ending is a whole overwhelming experience which combines physical, psychological, social and spiritual elements. My own PhD project looks at how… Continue reading

What’s in your mailbox? Treatment Escalation Plans in the time of COVID-19

Published on: Author: Guest Author Leave a comment

Dr. Caroline Cupit This blog sits at the intersection of my professional and personal experiences. I am a social scientist at University of Leicester, and I use ethnographic and qualitative interview methods to study the social organisation of healthcare, and to support quality improvement. I also have previous experience in hospice care. This blog is… Continue reading

Dying in the Margins begins recruiting bereaved carers for Digital Stories Online

Published on: Author: janerowley Leave a comment

Our investigation into the barriers to dying at home for people living in poverty in the UK has become even more important considering the Covid-19 pandemic. This is because Covid-19 and the resulting lockdown has increased levels of poverty and worsened conditions for those already experiencing poverty. As of September 2020, we have begun recruitment… Continue reading

How Can Death be the Great Equalizer in the Face of Inequality?

Published on: Author: Amy Shea Leave a comment

Eight minutes and forty-six seconds. That’s how long an officer kept his knee on George Floyd’s neck resulting in his death from asphyxiation. In eulogizing Floyd, Reverend Al Sharpton said, “Since four hundred and one years ago, the reason we could never be who we wanted and dreamed of being is you kept your knee… Continue reading

Global development of children’s palliative care: the picture in 2017

Published on: Author: davidclelland Leave a comment

In December we published the overall results from the third ‘world map’ of palliative care development, showing that only a small proportion of the global population, mostly in the global North, live in countries with the most advanced provision of palliative care. We can now present our assessment of global levels of children’s palliative care… Continue reading

Dying and death in “unprecedented” times: The role of learning

Published on: Author: Marian Krawczyk Leave a comment

The world stopped making sense when my sister died. She wasn’t supposed to die young, with a small child, most of her life still to be lived – it was an unprecedented event.  In order to try and find meaning to my inchoate grief, I began to explore others’ stories and experiences with dying and… Continue reading

Don’t watch with me

Published on: Author: sgreenhalgh Leave a comment

Reflections of a Hospice CEO on the emerging COVID-19 crisis Toiling up the knoll on brittle ground frost we clambered over a creaking stile to be rewarded by the sun glistening on Windermere set against a backdrop of distant snowclad fells.  Our short walk had brought a welcome opportunity to reflect during our annual board… Continue reading

In these strange times…

Published on: Author: josephwood2 2 Comments

Coronavirus is changing the way we live in a way that is repeatedly said to be unprecedented. We say we are living through strange times, extraordinary times, difficult times. For some of us lucky enough to be able to work from home time might be stretching out in lockdown into an endless series of Thursday… Continue reading