“Total pain” is the term used within hospice, palliative, and end-of-life care to describe pain which is complex and overwhelming, and which encompasses physical, psychological, social, and spiritual dimensions. It is an attempt to encapsulate experiences of suffering that are unique to advancing life-limiting illness, the end of life, and dying. The term was first… Continue reading →
The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading →
In this blog Gina Tarditi, a psychologist in Mexico City and End of Life Studies MSc student, describes an event she organised with oncologists to debate 2022 Lancet Report on the Value of Death. I work at The National Cancer Institute (INCAN) in Mexico City which is one of the largest cancer centers in Latin… Continue reading →
Today, Tuesday 27th September 2022, we are releasing the first 3 digital stories from our research project about barriers to, and experiences of, home dying when experiencing financial insecurity and hardship. Digital stories are 2-3 minute films combining photos, music and voiceover, within a narrative structure. This is a participatory visual method, adapted for use… Continue reading →
‘Total Pain’ as the Pain of a Lifetime This post looks at Cicely Saunders’ influential term ‘total pain’ in terms of endings and limits. ‘Total pain’ articulates how pain for someone whose life is ending is a whole overwhelming experience which combines physical, psychological, social and spiritual elements. My own PhD project looks at how… Continue reading →
Dr. Caroline Cupit This blog sits at the intersection of my professional and personal experiences. I am a social scientist at University of Leicester, and I use ethnographic and qualitative interview methods to study the social organisation of healthcare, and to support quality improvement. I also have previous experience in hospice care. This blog is… Continue reading →
Our investigation into the barriers to dying at home for people living in poverty in the UK has become even more important considering the Covid-19 pandemic. This is because Covid-19 and the resulting lockdown has increased levels of poverty and worsened conditions for those already experiencing poverty. As of September 2020, we have begun recruitment… Continue reading →
Eight minutes and forty-six seconds. That’s how long an officer kept his knee on George Floyd’s neck resulting in his death from asphyxiation. In eulogizing Floyd, Reverend Al Sharpton said, “Since four hundred and one years ago, the reason we could never be who we wanted and dreamed of being is you kept your knee… Continue reading →
