Posts by Marian Krawczyk

“It’s wooly by necessity”: Describing the role and practices of end-of-life doulas

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Several years ago, I started hearing about a new kind of community-based care role. Some called themselves ‘end-of-life doula’; others identified themselves as a ‘death doula’ or a ‘death midwife’. These terms describe people (primarily women) who provide a wide range of social, emotional, practical, and spiritual supports for people nearing the end of life,… Continue reading

My first post as Program Convenor for the End of Life Studies MSc Program

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I’m ridiculously pleased to announce that I have been appointed Program Convenor of the new End of Life Studies Degree Program starting in January 2021 (MSc/PgDip/PgCert). As many of you will be aware, for the last three years I have had the distinct privilege of being a research fellow with the End of Life Studies… Continue reading

Comparing Anticipatory/Advance Care Planning Documents in Scotland and Japan

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Dr. Marian Krawczyk and Dr. Haruka Hikasa Mitori Project The Mitori Project was a multidisciplinary project examining end of life issues in the UK and Japan, led by Professor David Clark. It brought together academics from both countries using perspectives of social science, humanities, and ethics to examine how care of people at the end… Continue reading

Dying and death in “unprecedented” times: The role of learning

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The world stopped making sense when my sister died. She wasn’t supposed to die young, with a small child, most of her life still to be lived – it was an unprecedented event.  In order to try and find meaning to my inchoate grief, I began to explore others’ stories and experiences with dying and… Continue reading

Dr Marian Krawczyk introduces: A new approach to suffering in life-limiting illness

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A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome. Dr Marian Krawczyk talks about her new Carnegie Research Incentive Grant: This grant enables her to conduct a targeted review of literature across social, medical, and biological research to develop an innovative transdisciplinary theory that considers the connection… Continue reading

A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome

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People with life-limiting illnesses report exceptionally high rates of psychosocial and existential suffering in conjunction with bodily pain. Cicely Saunders famously conceptualized this cumulative distress as ‘total pain’. As you may already know, we’re pretty interested in total pain around here. Professor David Clark has written extensively about it (see here for an overview), and… Continue reading

In touch with the dead

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One of the most fundamental ways we show love and connection is through touch. This behaviour is so central to our understanding of what it means to be in relationship with another person that visual representations of touch have become one of the most common visual forms of ‘shorthand’ to indicate compassionate caring, including at… Continue reading