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The continuing relevance of total pain in the 21st Century: Call for contributors

Published on: Author: Marian Krawczyk 1 Comment

The recent Lancet Commission into the Value of Death reports endemic suffering at the end of life in both global North and South countries and calls for the further expansion of holistic philosophies and practices of end of life care. Here at the End of Life Studies Group, we believe that one way to do… Continue reading

Total Pain: Whose experience is it anyway?

Published on: Author: clairemorris1 Leave a comment

The authors of this blog have both been involved in palliative care for over a decade, albeit for different reasons.  Claire Morris is a global palliative care advocate within a palliative care international non-governmental organisation and Lucy Watts has been accessing palliative care services since she was 17 years old as a result of a rare,… Continue reading

‘Total Pain’, Extinction, and the End of the World

Published on: Author: josephwood2 Leave a comment

‘Total Pain’ as the Pain of a Lifetime This post looks at Cicely Saunders’ influential term ‘total pain’ in terms of endings and limits. ‘Total pain’ articulates how pain for someone whose life is ending is a whole overwhelming experience which combines physical, psychological, social and spiritual elements. My own PhD project looks at how… Continue reading

In these strange times…

Published on: Author: josephwood2 2 Comments

Coronavirus is changing the way we live in a way that is repeatedly said to be unprecedented. We say we are living through strange times, extraordinary times, difficult times. For some of us lucky enough to be able to work from home time might be stretching out in lockdown into an endless series of Thursday… Continue reading

Dr Marian Krawczyk introduces: A new approach to suffering in life-limiting illness

Published on: Author: Marian Krawczyk Leave a comment

A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome. Dr Marian Krawczyk talks about her new Carnegie Research Incentive Grant: This grant enables her to conduct a targeted review of literature across social, medical, and biological research to develop an innovative transdisciplinary theory that considers the connection… Continue reading

Dr Suresh Kumar pays tribute to a friend of the same name

Published on: Author: David Clark 4 Comments

We don’t often post pieces of this kind on our blog, but I was so struck by the simplicity of this tribute when I read it, that I asked its writer if we could post it here. Dr Suresh Kumar, a good friend to our group and active collaborator, is well known for his work… Continue reading

A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome

Published on: Author: Marian Krawczyk Leave a comment

People with life-limiting illnesses report exceptionally high rates of psychosocial and existential suffering in conjunction with bodily pain. Cicely Saunders famously conceptualized this cumulative distress as ‘total pain’. As you may already know, we’re pretty interested in total pain around here. Professor David Clark has written extensively about it (see here for an overview), and… Continue reading

New Beginnings: on a PhD journey via Megabus

Published on: Author: clairemorris1 1 Comment

By Claire Morris As I start my part time distance PhD with Glasgow End of Life Studies Group, at the forefront of my mind are the practical and social implications of this life change and the possibilities for the five years ahead. Transitioning to remote part-time study has not been too challenging and I am… Continue reading