In March 2024, the summative findings paper for the ESRC-funded ‘Dying in the Margins’ study was published in Social Science & Medicine – Qualitative Research in Health. Our visual methods study shed light on the challenges of home dying in the context of financial hardship and deprivation in the UK. Utilising photovoice, professional documentary photography… Continue reading
To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading
This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading
The ESRC-funded Dying in the Margins study officially ended this week after 4 years (31st August 2023). Below are some of our reflections on this complex study. The various impacts of the work are still unfolding as Marie Curie continue to press for legislative changes at Holyrood and Westminster, and as we begin to take the… Continue reading
The aim of the Dying in the Margins research project has been to explore how socio-economic circumstances shape end-of-life experiences. Open conversations about financial hardship are important, and increasingly so in the context of rising poverty rates due to inflation and the cost of living crisis. Yet, throughout our study, we observed that there can… Continue reading
The Dying in the Margins study, a project exploring the way socio-economic circumstances intersect with end-of-life experiences, culminated in a large public exhibition, The Cost of Dying, held at the Advanced Research Centre at The University of Glasgow (25 April – 5 May 2023). Over the ten days the exhibition ran, we received an overwhelming… Continue reading
The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading
Today, Tuesday 27th September 2022, we are releasing the first 3 digital stories from our research project about barriers to, and experiences of, home dying when experiencing financial insecurity and hardship. Digital stories are 2-3 minute films combining photos, music and voiceover, within a narrative structure. This is a participatory visual method, adapted for use… Continue reading
