This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading
The ESRC-funded Dying in the Margins study officially ended this week after 4 years (31st August 2023). Below are some of our reflections on this complex study. The various impacts of the work are still unfolding as Marie Curie continue to press for legislative changes at Holyrood and Westminster, and as we begin to take the… Continue reading
The Dying in the Margins study, a project exploring the way socio-economic circumstances intersect with end-of-life experiences, culminated in a large public exhibition, The Cost of Dying, held at the Advanced Research Centre at The University of Glasgow (25 April – 5 May 2023). Over the ten days the exhibition ran, we received an overwhelming… Continue reading
Our investigation into the barriers to dying at home for people living in poverty in the UK has become even more important considering the Covid-19 pandemic. This is because Covid-19 and the resulting lockdown has increased levels of poverty and worsened conditions for those already experiencing poverty. As of September 2020, we have begun recruitment… Continue reading
One of the greatest challenges facing the NHS, in this its 70th anniversary year, is the care of ageing and increasingly frail older people. End of life care is not something that we as doctors seem to want to talk about, which means that when patients are admitted as an emergency to hospital the default… Continue reading
Suffering and pain present both practical and theoretical problems. This might be surprising. Having long faced the problem of pain, we might have expected it, by now, to be solved. Pain treatment, however, remains woefully inadequate. Chronic pain is not only often incurable and difficult to manage, it is proliferating. Pain treatment and management are… Continue reading
The Glasgow End of Life Studies Group hosted a very lively and well-attended ‘Talk & Tea’ on March 22nd. The event showcased a range of research and initiatives related to later and end of life, and brought together a diverse group of community members. We organized the event to highlight how our work takes place… Continue reading
This invitation stems from meeting Margaret Dobie, who I first got to know last fall, shortly after I arrived in Dumfries to join the Glasgow End of Life Studies Group. Margaret has attended many of the Group’s community events in Dumfries and Galloway over the last two years, and when I wrote my first post… Continue reading
