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Assisted Dying in Scotland: As a New Parliamentary Bill is Launched, Time to Bust 5 Myths

Published on: Author: Naomi Richards 4 Comments

The proposed Assisted Dying for Terminally Ill Adults [Scotland] Bill launched on Thursday 28th March 2024. The Bill proposes allowing terminally ill people over the age of 16 the right to request lethal medication from a doctor which they would self-administer to bring an immediate end to their own life at a time and place of their choosing.… Continue reading

‘Dying in the Margins’: From Study Findings to Policy Changes

Published on: Author: samquinn Leave a comment

In March 2024, the summative findings paper for the ESRC-funded ‘Dying in the Margins’ study was published in Social Science & Medicine – Qualitative Research in Health. Our visual methods study shed light on the challenges of home dying in the context of financial hardship and deprivation in the UK. Utilising photovoice, professional documentary photography… Continue reading

Dying in the Margins: Joost ten Wolde on his wife Stacey O’Brien’s end of life experiences

Published on: Author: samquinn 2 Comments
Stacey sits on her bed looking towards the camera.

This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading

Dying in the Margins – Reflections

Published on: Author: Naomi Richards 1 Comment

The ESRC-funded Dying in the Margins study officially ended this week after 4 years (31st August 2023). Below are some of our reflections on this complex study. The various impacts of the work are still unfolding as Marie Curie continue to press for legislative changes at Holyrood and Westminster, and as we begin to take the… Continue reading

The Cost of Dying: Photography Exhibition

Published on: Author: samquinn 1 Comment

The Dying in the Margins study, a project exploring the way socio-economic circumstances intersect with end-of-life experiences, culminated in a large public exhibition, The Cost of Dying, held at the Advanced Research Centre at The University of Glasgow (25 April – 5 May 2023). Over the ten days the exhibition ran, we received an overwhelming… Continue reading

Dying in the Margins begins recruiting bereaved carers for Digital Stories Online

Published on: Author: janerowley Leave a comment

Our investigation into the barriers to dying at home for people living in poverty in the UK has become even more important considering the Covid-19 pandemic. This is because Covid-19 and the resulting lockdown has increased levels of poverty and worsened conditions for those already experiencing poverty. As of September 2020, we have begun recruitment… Continue reading

The challenge of caring for frail older people as they enter the last year of their lives

Published on: Author: chrisisles Leave a comment

One of the greatest challenges facing the NHS, in this its 70th anniversary year, is the care of  ageing and increasingly frail older people.  End of life care is not something that we as doctors seem to want to talk about, which means that when patients are admitted as an emergency to hospital the default… Continue reading

Collaboration on Suffering and Autonomy at the End of Life

Published on: Author: jennifercorns Leave a comment

Suffering and pain present both practical and theoretical problems. This might be surprising. Having long faced the problem of pain, we might have expected it, by now, to be solved. Pain treatment, however, remains woefully inadequate. Chronic pain is not only often incurable and difficult to manage, it is proliferating. Pain treatment and management are… Continue reading