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‘Dying in the Margins’: From Study Findings to Policy Changes

Published on: Author: samquinn Leave a comment

In March 2024, the summative findings paper for the ESRC-funded ‘Dying in the Margins’ study was published in Social Science & Medicine – Qualitative Research in Health. Our visual methods study shed light on the challenges of home dying in the context of financial hardship and deprivation in the UK. Utilising photovoice, professional documentary photography… Continue reading

Another Day in Paradise and The Hitchhiker’s Guide to the Galaxy: Two Prompts for Contemplating Death as an 11-Year Old Child

Published on: Author: Naomi Richards 2 Comments

The first half of this blog was written by Simon Dewhurst, who works in the facilities team at the School of Social and Environmental Sustainability. The second half is written by Dr Marian Krawczyk, Lecturer and programme lead for the End of Life Studies PGCert/PGDip/MSc. The genesis of the blog was a serendipitous conversation between… Continue reading

New Digital Story for Dying in the Margins: Frank’s Story

Published on: Author: samquinn 2 Comments

To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading

Dying in the Margins: Joost ten Wolde on his wife Stacey O’Brien’s end of life experiences

Published on: Author: samquinn 2 Comments
Stacey sits on her bed looking towards the camera.

This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading

DeathWrites: Writing Truth Through Fiction

Published on: Author: Naomi Richards Leave a comment

This blog piece was written by Charlotte Luke, a writer from Inverness, who is also part of the RSE-funded DeathWrites network of 30 Scotland-based writers. Last year, around 8 months after my dad died in a hillwalking accident, I heard about the DeathWrites Network, a group of writers tackling the subjects of death, dying and… Continue reading

The Cost of Dying Photography Exhibition

Published on: Author: samquinn 5 Comments

The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading

Creating Representations of Dying, Death, and Grief: An Innovative Student Assignment

Published on: Author: Naomi Richards Leave a comment

On the End of Life Studies MSc Programme, there is a course entitled Cultural Representations of Death and Dying which examines how dying, death and grief have been represented in popular culture (film, TV, mainstream fiction), visual arts (fine art, photography) and literary genres (creative non- fiction) over the last half century. Students are introduced to… Continue reading

DeathWrites Network – 2nd Symposium

Published on: Author: Naomi Richards 1 Comment

The DeathWrites Network, funded by the Royal Society of Edinburgh (RSE) and University of Glasgow Arts Lab, held its 2nd Symposium on 6th October, 2022. During the hybrid event at the historic Glasgow Women’s Library, we heard keynotes from the Scottish poet, playwright, and performer Hannah Lavery and from the Open Museum curator, Elaine Addington. Our Network of 30 talented Scotland-based writers,… Continue reading