Between 2019 and 2023, I led a research study called Dying in the Margins. This was funded by UKRI and supported by Marie Curie. The study was an attempt to better understand the experiences of people dying at home in circumstances of financial hardship and deprivation in the UK. Uniquely, we used a variety of visual methods to capture… Continue reading
In March 2024, the summative findings paper for the ESRC-funded ‘Dying in the Margins’ study was published in Social Science & Medicine – Qualitative Research in Health. Our visual methods study shed light on the challenges of home dying in the context of financial hardship and deprivation in the UK. Utilising photovoice, professional documentary photography… Continue reading
The first half of this blog was written by Simon Dewhurst, who works in the facilities team at the School of Social and Environmental Sustainability. The second half is written by Dr Marian Krawczyk, Lecturer and programme lead for the End of Life Studies PGCert/PGDip/MSc. The genesis of the blog was a serendipitous conversation between… Continue reading
To coincide with the display of the ‘Cost of Dying’ exhibition at the Scottish Parliament (14th – 16th November 2023), we present our final digital story; “Frank’s Story”. Key themes in Frank’s story are the physical inaccessibility of the home affecting care provision, financial struggles in caring for a terminally ill family member, and the… Continue reading
This blog is written by Joost ten Wolde My wife, Stacey O’Brien, had a TP53 genetic fault; a condition which increases a person’s risk of getting cancer by almost 100%. This gene is linked to many different kinds of cancers. Stacey had cancer nine times in total: sarcoma in the leg, breast, lymph nodes, back,… Continue reading
This blog piece was written by Charlotte Luke, a writer from Inverness, who is also part of the RSE-funded DeathWrites network of 30 Scotland-based writers. Last year, around 8 months after my dad died in a hillwalking accident, I heard about the DeathWrites Network, a group of writers tackling the subjects of death, dying and… Continue reading
The Dying in the Margins project began in 2019, with the aim of uncovering the reasons behind unequal access to home dying for people experiencing financial hardship and socio-economic deprivation in the UK. Now, in 2023, we are thrilled to announce the public exhibition of the photographs created through the study. The ‘Cost of Dying’ exhibition will be… Continue reading
On the End of Life Studies MSc Programme, there is a course entitled Cultural Representations of Death and Dying which examines how dying, death and grief have been represented in popular culture (film, TV, mainstream fiction), visual arts (fine art, photography) and literary genres (creative non- fiction) over the last half century. Students are introduced to… Continue reading
