In the summer of 2018, Dr Marian Krawczyk and I co-authored an article about how the various western cultural ‘scripts’ which give meaning to dying might be influenced when assisted dying is made lawful and the very end stages of dying becomes, in essence, an ‘optional’ part of the lifecourse. Our thinking was very much… Continue reading
A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome. Dr Marian Krawczyk talks about her new Carnegie Research Incentive Grant: This grant enables her to conduct a targeted review of literature across social, medical, and biological research to develop an innovative transdisciplinary theory that considers the connection… Continue reading
We are all aware of the headlines about the impact of government austerity measures on communities up and down the UK. But what impact has austerity had on people’s experiences of dying and, specifically, their ability to die in their own home? What is it like to be facing death in materially constrained circumstances in… Continue reading
Death is not monolithic. It is better to think about deaths and dyings. So said a participant about what she had learnt from our half day symposium on reading and writing death, in May 2019, held at the St Mungo Museum for Religious Life and Art in Glasgow . Not monolithic indeed. Our plan for… Continue reading
People with life-limiting illnesses report exceptionally high rates of psychosocial and existential suffering in conjunction with bodily pain. Cicely Saunders famously conceptualized this cumulative distress as ‘total pain’. As you may already know, we’re pretty interested in total pain around here. Professor David Clark has written extensively about it (see here for an overview), and… Continue reading
In summer 2018 I spotted a call from the Economic and Social Research Council seeking proposals to build collaboration between researchers in Japan and the United Kingdom, with no constraints on the subject matter. It looked an interesting opportunity. I quickly reached out to my Japanese colleague the philosopher Hirobumi Takenouchi and within a few… Continue reading
The compassionate world of palliative care is currently going through what one activist has called ‘a winter of discontent’. In a field where a sense of shared and pioneering purpose has long driven development, a measure of disagreement has broken out. The major advocacy and professional societies in palliative care are lining up on opposite… Continue reading
One of Dame Cicely Saunders’ most enduring legacies is the importance of being present, of witnessing, at the end of life. Academic witnessing at the margins of life and death can require balancing an intense intimacy with simultaneously gaining enough distance to ‘see’ significant or representative broader concepts. What does this mean for us as… Continue reading
