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A new approach to suffering in life-limiting illness: Total pain, the brain-gut axis, and the human microbiome

Published on: Author: Marian Krawczyk Leave a comment

People with life-limiting illnesses report exceptionally high rates of psychosocial and existential suffering in conjunction with bodily pain. Cicely Saunders famously conceptualized this cumulative distress as ‘total pain’. As you may already know, we’re pretty interested in total pain around here. Professor David Clark has written extensively about it (see here for an overview), and… Continue reading

‘Watch with Me’ and the continuing significance of Cicely Saunders

Published on: Author: David Clark Leave a comment

This week I was delighted to receive a letter seeking permission for the little book Watch with Me to be translated into Slovenian. Publication of the new edition next year will mean Watch with Me has been translated into six languages. More could be on the way. The continuing interest in the book is its… Continue reading

A Christmas Letter by Cicely Saunders, from twenty years ago

Published on: Author: David Clark Leave a comment

Cicely Saunders was a great writer of letters. Indefatigable in her correspondence, she was equally happy dashing off the briefest of newsy notes, or setting out several pages of detailed text, full of insight and reflection. My acquaintance with her letters, built up over many years, was invaluable to me as I was writing her… Continue reading

Watch With Me – Velai Comigo

Published on: Author: franklinssantos Leave a comment

My name is Franklin S. Santos, I am a geriatric doctor, and 11 years ago I started working in teaching, research and assistance in the areas of Thanatology and Palliative Care in Brazil. Since then, I have had the opportunity to organise courses and interdisciplinary books that address these issues. These books became a reference… Continue reading

The launch of the new Cicely Saunders biography

Published on: Author: milagerson Leave a comment

I recall learning of Cicely Saunders’ death in July 2005. It was morning in the Pacific Northwest and I was planning my day of home visits with hospice patients and families. I had greatly admired the woman who created and embodied an approach to care for dying that acknowledged the whole person as they were… Continue reading

Affective and Ethical Tightropes of Witnessing – Highlights from our PhD Workshop

Published on: Author: Jacqueline Kandsberger Leave a comment

One of Dame Cicely Saunders’ most enduring legacies is the importance of being present, of witnessing, at the end of life. Academic witnessing at the margins of life and death can require balancing an intense intimacy with simultaneously gaining enough distance to ‘see’ significant or representative broader concepts. What does this mean for us as… Continue reading