The recent Lancet Commission into the Value of Death reports endemic suffering at the end of life in both global North and South countries and calls for the further expansion of holistic philosophies and practices of end of life care. Here at the End of Life Studies Group, we believe that one way to do… Continue reading
The authors of this blog have both been involved in palliative care for over a decade, albeit for different reasons. Claire Morris is a global palliative care advocate within a palliative care international non-governmental organisation and Lucy Watts has been accessing palliative care services since she was 17 years old as a result of a rare,… Continue reading
‘Total Pain’ as the Pain of a Lifetime This post looks at Cicely Saunders’ influential term ‘total pain’ in terms of endings and limits. ‘Total pain’ articulates how pain for someone whose life is ending is a whole overwhelming experience which combines physical, psychological, social and spiritual elements. My own PhD project looks at how… Continue reading
Cicely Saunders died on 14th July 2005. I was running an international end of life care summer school at Lancaster University at the time. That evening, staff and students gathered in the home of a colleague: the summer school party had turned into a wake. I read out a draft of an obituary I had… Continue reading
Coronavirus is changing the way we live in a way that is repeatedly said to be unprecedented. We say we are living through strange times, extraordinary times, difficult times. For some of us lucky enough to be able to work from home time might be stretching out in lockdown into an endless series of Thursday… Continue reading
People with life-limiting illnesses report exceptionally high rates of psychosocial and existential suffering in conjunction with bodily pain. Cicely Saunders famously conceptualized this cumulative distress as ‘total pain’. As you may already know, we’re pretty interested in total pain around here. Professor David Clark has written extensively about it (see here for an overview), and… Continue reading
This week I was delighted to receive a letter seeking permission for the little book Watch with Me to be translated into Slovenian. Publication of the new edition next year will mean Watch with Me has been translated into six languages. More could be on the way. The continuing interest in the book is its… Continue reading
I started to study palliative care in 2008, motivated by personal reasons. Today there are social media, TV programmes, podcasts, and many other ways to spread the message about the need for palliative care. In 2008 that wasn’t the reality at all. I think the first time I had contact with the Dame Cicely Saunders’… Continue reading
